Nothing could have prepared me for the news I received just 6 short weeks after giving birth to a “healthy” 9lb. 7oz. baby girl that my husband and I named Bailey Quinn. Looking into her chubby little face, I would have never guessed that she had cancer. Right then. Lurking in her little infant body, a killer so deadly and quiet. It had a name. A name that I was not at all familiar with, but one that I would grow to hate to my very core within a few short weeks.
Our Mission: To provide essential support and services to families affected by childhood cancer through family networking, community awareness, financial assistance and advocacy for a cure.
Bailey Quinn ~
An E.R visit to assist a relative, with my little bundle in tow, I realized while I was at the hospital, that Bailey felt warm and might have a fever. She had never so much as had a sniffle before this moment. The E.R. doctor was helpful and kind, but quickly realizing it might be something more serious in one so young, he acted quickly taking her temp and ordering labs. It seems sometimes, that after that moment, our lives truly became a whirlwind…..a tornado, really. The doctors could clearly see something was not right in Bailey’s labs, but they were hesitant to say anything conclusive, I believe, because it was approaching one o clock in the morning.. Instead they settled us into a little room on the third floor where we would hear the sad news early the next morning.
After hearing Bailey’s diagnosis and learning what leukemia was, as any parents natural reaction would be, ours was, ” OK, so how do we fight this?” Kind of like, You have given us the bad news, lets here the good news about how you are going to give her a miracle drug and she will be well and we will all go home, right? Sadly, our doctor let us know that because of her age and her diagnosis, the treatment would have to be harsh and long in an attempt to win the upper hand of this enemy. Two years long. So harsh that her little baby organs might not be able to withstand treatment.. She told us that Bailey would only have a 20% chance of surviving. The day was September 26, 2009…..
Bailey would undergo many surgeries, hospital stays, spinal taps, bone marrow tests, transfusions, chemotherapy, steroids, and medications within the next two years. In that two years, we would be blessed ( yes, I said blessed ) to become a part of our clinic family. Our doctors took such great care of our little bundle. Patiently sitting and talking with me, while my lonely self chattered their ears off, when Bailey and I would be inpatient. They would listen to our concerns and sought the best of care for Bailey and her situation. Our nurses were amazing, it makes me cry right now to think of all the love and care and attention they have paid to the little details in not just Bailey’s life but also the lives of our other three children. They have gone above and beyond to accommodate the needs of our growing family. Even though Bailey is currently off of all treatment meds, the monitoring process will remain for a life time. We continue to visit our clinic family, crying when it expands. This is one family that you welcome the new members, but would never send an invite. Even though Cancer Families United is a fairly new organization, we are excited to see its growth and what they have to offer families that are traveling this road. They have already made a big impact in so many families lives and with more support they will be able to offer even more, to help families like ours in the Southwest Michigan area.
Bailey’s future is unknown. Statistics say that she is at high risk of relapse. She has truly beat the odds. God gave us a true miracle and every day we are in awe of that. She currently is a growing thriving 4 year old.
~~Erin, Bailey’s mom